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Childhood Cancer Survivors' Knowledge of Their Diagnosis, Treatment, and Risk of Late Effects: The Impact of Care in a Specialized Survivorship Clinic


N/A
N/A
21 Years
Open (Enrolling)
Both
Childhood Cancer

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Trial Information

Childhood Cancer Survivors' Knowledge of Their Diagnosis, Treatment, and Risk of Late Effects: The Impact of Care in a Specialized Survivorship Clinic


Inclusion Criteria:



- Treatment for primary malignancy per risk-adapted protocol

- Age ≤ 21 years at time of diagnosis

- Currently alive without evidence of disease

- Off therapy for no more than 15 years

Exclusion Criteria:

-Patients who have received a bone marrow transplant

Type of Study:

Observational

Study Design:

Observational Model: Cohort

Outcome Measure:

Knowledge gained by attending a multispecialty Survivorship Clinic which will be measured by comparison of self report with medical record data in both cross-sectional and longitudinal approach.

Outcome Description:

In addition to data from patient interviews, a review of medical records will include general patient demographic data as well as data regarding cancer diagnosis, treatment and ongoing follow-up care.

Outcome Time Frame:

12 months

Safety Issue:

No

Authority:

United States: Institutional Review Board

Study ID:

VICCREACH1038

NCT ID:

NCT01223872

Start Date:

August 2010

Completion Date:

August 2016

Related Keywords:

  • Childhood Cancer

Name

Location

Vanderbilt-Ingram Cancer Center Nashville, Tennessee  37232-6838