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Informed Brain Cancer Patients


N/A
18 Years
89 Years
Not Enrolling
Both
Brain Tumor

Thank you

Trial Information

Informed Brain Cancer Patients


A mere subset of the reasons behind unmet health care literacy needs include the health care
systems' increasing complexity, increased time constraints, profound treatment decision
making requirements, decreased financial resources, fracturing social networks and
diversifying educational and cultural needs.

This project will use focus groups to explore the factors involved in brain cancer health
care literacy from the perspectives of patients and those involved in their care.
Hypothesis generated from this project will be directly applied toward future projects. The
overarching goals are improved access and adequacy of health care literacy information
through the eventual development of validated, useful, reliable health care literacy
information tools for brain cancer patients and those involved in their care.


Inclusion Criteria:



BRAIN TUMOR PATIENTS:

- 18 to 89 years of age

- Have or have had any type of brain tumor

- Ability to communicate in English

- Willingness to participate in a 30-60 minute focus group

HEALTH CARE PROVIDERS:

- 18 to 89 years of age

- Be a health care provider who cares for any type of brain tumor

- Ability to communicate in English

- Willingness to participate in a 30-60 minute focus group

Exclusion Criteria:

- None

Type of Study:

Observational

Study Design:

Time Perspective: Prospective

Outcome Measure:

Explore the factors involved in health care literacy from the perspective of brain cancer patients.

Outcome Description:

An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.

Outcome Time Frame:

1 Year

Safety Issue:

No

Principal Investigator

Erin M Dunbar, MD

Investigator Role:

Principal Investigator

Investigator Affiliation:

University of Florida

Authority:

United States: Institutional Review Board

Study ID:

708-2009

NCT ID:

NCT01130220

Start Date:

May 2010

Completion Date:

December 2011

Related Keywords:

  • Brain Tumor
  • Brain Tumor
  • Brain Neoplasm
  • Brain Neoplasms

Name

Location
University of Florida Gainesville, Florida  32610-0277