Connect™ CLL: The Chronic Lymphocytic Leukemia Disease Registry
N/A
18 Years
N/A
18 Years
N/A
Open (Enrolling)
Both
Chronic Lymphocytic Leukemia
Both
Chronic Lymphocytic Leukemia
Trial Information
Connect™ CLL: The Chronic Lymphocytic Leukemia Disease Registry
Inclusion Criteria:
- Clinical diagnosis with CLL
- Clinical decision made to initiate first-line therapy, second-line therapy or
subsequent line of therapy prior to enrollment into the ConnectTM CLL registry, but
within 2 months of enrollment
- Age≥18 years
- Willing and able to provide signed informed consent
- Willing and able to complete patient assessment questionnaires either alone or with
minimal assistance from caregivers and/or trained site personnel
Exclusion Criteria:
- Participation in a clinical study in which study treatment is blinded
- Patient condition is considered terminal (i.e.<6 months to live)
Type of Study:
Observational
Study Design:
Observational Model: Cohort, Time Perspective: Prospective
Outcome Measure:
Identify and summarize patterns in therapeutic regimens and patient outcomes
Outcome Description:
The primary objective is to 1) describe practice patterns of first line therapy regimens and subsequent therapeutic strategies in patients initiated on therapy for CLL, as well as initiated on second line and subsequent therapies, in the community and academic setting (2) Provide insight into therapeutic regimens and therapy sequence in clinical practice as they relate to clinical outcomes in patients initiated on first-line, second-line or subsequent therapies for CLL.
Outcome Time Frame:
up to 8 years
Safety Issue:
No
Principal Investigator
Kenneth Foon, MD
Investigator Role:
Study Director
Investigator Affiliation:
Celgene Corporation
Authority:
United States: Institutional Review Board
Study ID:
Connect™ CLL
NCT ID:
NCT01081015
Start Date:
September 2009
Completion Date:
September 2017
Related Keywords:
- Chronic Lymphocytic Leukemia
- Chronic Lymphocytic Leukemia
- CLL
- disease registry
- Connect™
- Leukemia
- Leukemia, Lymphocytic, Chronic, B-Cell
- Leukemia, Lymphoid
Name | Location |
|---|---|
| MD Anderson Cancer Center | Houston, Texas 77030-4096 |
| St. Joseph Regional Cancer Center | Bryan, Texas 77802 |
| West Michigan Cancer Center | Kalamazoo, Michigan 49007-3731 |
| Mary Bird Perkins Cancer Center | Baton Rouge, Louisiana 70809 |
| Joe Arrington Cancer Research and Treatment Center | Lubbock, Texas 79410-1894 |
| Waukesha Memorial Hospital | Waukesha, Wisconsin 53188 |
| Rush University Medical Center | Chicago, Illinois 60612-3824 |
| Capitol Comprehensive Cancer Care Clinic | Jefferson City, Missouri 65109 |
| Wilford Hall Medical Center | Lackland Air Force Base, Texas 78236-5300 |
| Hematology Oncology Associates of the Quad Cities | Bettendorf, Iowa 52722 |
| Georgia Cancer Specialists | Decatur, Georgia 30033 |
| Oncology Consultants | Houston, Texas 77024 |
| Carle Cancer Center | Urbana, Illinois 61801 |
| Cancer and Hematology Centers of Western Michigan | Grand Rapids, Michigan 49546 |
| Southern Nevada Cancer Research Foundation | Las Vegas, Nevada 89106 |
| Elmhurst Memorial Hospital | Elmhurst, Illinois 60126 |
| Northern Utah Associates | Ogden, Utah 84403 |
| St. Joseph Oncology, Inc. | Saint Joseph, Missouri 64506 |
| Lancaster Cancer Center | Lancaster, Pennsylvania 17604 |
| Straub Clinic and Hospital | Honolulu, Hawaii 96813 |
| The Center for Cancer and Hematologic Disease | Cherry Hill, New Jersey 08003 |
| Oncology Specialists, S.C. | Park Ridge, Illinois 60068 |
| Illinois Cancer Care | Peoria, Illinois 61615 |
| Eastchester Center for Cancer Care | Bronx, New York 10469 |
| Broome Oncology | Johnson City, New York 13790 |
| Phoebe Putney Memorial Hospital | Albany, Georgia 31703 |
| McFarland Clinic | Ames, Iowa 50010 |
| Providence Everett Medical Center | Everett, Washington 98201 |
| Hematology Oncology Consultants, Inc. | St. Louis, Missouri 63136 |
| Fallon Clinic | Worcester, Massachusetts 01605 |
| Coastal Bend Cancer Center | Corpus Christi, Texas 78404 |
| Cancer Care Center, Inc. | New Albany, Indiana 47150 |
| Roger Maris Cancer Center | Fargo, North Dakota 58122 |
| Berks Hematology Oncology Associates | West Reading, Pennsylvania 19611 |
| Montana Cancer Institute Foundation | Missoula, Montana 59802 |
| Covenant Clinic | Waterloo, Iowa 50702 |
| Charleston Hematology Oncology Associates, PA | Charleston, South Carolina 29403 |
| South Texas Institute of Cancer | Corpus Christi, Texas 78405 |
| Family Cancer Center, PLLC | Collierville, Tennessee 38017 |
| Columbia Basin Hematology and Oncology | Kennewick, Washington 99336 |
| Orchard Research | Skokie, Illinois 60076 |
| Peachtree Hematology-Oncology Consultants | Atlanta, Georgia 30309 |
| Alliance Hematology Oncology, Pa | Westminster, Maryland 21157 |
| Central Utah Clinic | Provo, Utah 84003 |
| Medical Specialists of the Palm Beaches | Lake Worth, Florida 33454 |
| Sanford Clinic | Sioux Falls, South Dakota 57104 |
| Legacy Pharma Research | Bismarck, North Dakota 58501 |
| Scott & White Clinic | Temple, Texas 76508 |
| University Cancer Institute | Boyton Beach, Florida 33426 |
| Ingalls Cancer Research Center | Harvey, Illinois 60426 |
| Gabrail Cancer Center Research | Canton, Ohio 44718 |
| St. John's Medical Research Institute | Springfield, Missouri 65807 |
| Gettysburg Cancer Center | Gettysburg, Pennsylvania 17325 |
| Providence St. Mary Regional Cancer Center | Walla Walla, Washington 99362 |
| Thomas Niederman, MD | Boynton Beach, Florida 33435 |
| Pasco Hernando Oncology Associates (Kumar) | New Port Richey, Florida 34652 |
| US Oncology - Dublin Hematology & Oncology | Dublin, Georgia 31021 |
| US Oncology - Cancer Care & Hematology Specialists of Chicagoland - Arlington | Arlington Heights, Illinois 60005 |
| John H. Stroger, Jr., Hospital of Cook County | Chicago, Illinois 60612 |
| US Oncology - Cancer Care & Hematology Specialists of Chicagoland - Niles | Niles, Illinois 60714 |
| US Oncology - Cancer Care & Hematology Specialists of Chicagoland - Winfield | Winfield, Illinois 60190 |
| St. Francis Cancer Research | Beech Grove, Indiana 46107 |
| Center for Cancer Care @ Goshen Health Systems | Goshen, Indiana 46526 |
| Indiana University Cancer Center Clinical Research Office | Indianapolis, Indiana 46202 |
| Cancer Care Partners, LLC | Mishawaka, Indiana 46545 |
| Iowa Blood and Cancer Care of PCI | Cedar Rapids, Iowa 52402 |
| Cancer Center of Kansas, PA | Wichita, Kansas 67214 |
| Western Maryland Health System, Inc. | Cumberland, Maryland 21502 |
| Capecod Hospital / Davenport Mugar Cancer Center | Hyannis, Massachusetts 02601 |
| Michigan State University / McLaren Regional Medical Center | Flint, Michigan 48532 |
| Duluth Clinic Cancer Center | Duluth, Minnesota 55805 |
| Park Nicollet Institute - Louisiana Ave. | St. Louis Park, Minnesota 55426 |
| Park Nicollet Institute Metro - MN CCOP | St. Louis Park, Minnesota 55416 |
| US Oncology - University of Tennessee Cancer Institute - Southaven | Southaven, Mississippi 38671 |
| US Oncology - Missouri Cancer Associates | Columbia, Missouri 65201 |
| Southeast Nebraska Hematology & Oncology Consultants, PC | Lincoln, Nebraska 68510 |
| Nebraska Hematology Oncology, PC | Lincoln, Nebraska 68506 |
| VA Sierra Nevada Healthcare System | Reno, Nevada 89502 |
| Drs. Forte, Schleider, Attas & Condemi, PA | Englewood, New Jersey 07432 |
| Hematology Oncology of Northern New Jersey | Morristown, New Jersey 07962 |
| Charles Farber, MD | Morristown, New Jersey 07962 |
| Steeplechase Cancer Center | Somerville, New Jersey 08876 |
| Samuel S Stratton VAMC | Albany, New York 12208 |
| Hematology Oncology Associates of Western Suffolk | Bay Shore, New York 11706 |
| Bronx River Medical Associates | Bronx, New York 10467 |
| Eduardo Saponara, MD | Bronxville, New York 10708 |
| Jonah Cancer Care Center & ECMC | Buffalo, New York 14215 |
| SUNY Upstate Medical University - Adult Program | Syracuse, New York 14222 |
| US Oncology - Cancer Centers of North Carolina - Cary | Cary, North Carolina 27518 |
| US Oncology - Cancer Centers of North Carolina - Falls | Raleigh, North Carolina 27614 |
| US Oncology - Cancer Centers of North Carolina - Macon | Raleigh, North Carolina 27607 |
| Summa Health System - Cancer Research Office | Akron, Ohio 44304 |
| Mid Ohio Oncology / Hematology, Inc. | Columbus, Ohio 43219 |
| Hematology Oncology Center, Inc. | Elyria, Ohio 44035 |
| US Oncology - Willamette Valley Cancer Institute - Eugene | Eugene, Oregon 97401-8122 |
| US Oncology - Northwest Cancer Specialists, PC - Portland - Barnes | Portland, Oregon 97225 |
| US Oncology - Northwest Cancer Specialists, PC - Portland - Broadway | Portland, Oregon 97227 |
| US Oncology - Northwest Cancer Specialists, PC - Portland - Hoyt | Portland, Oregon 97213-2996 |
| US Oncology - Willamette Valley Cancer Institute - Springfield | Springfield, Oregon 97477 |
| US Oncology - Northwest Cancer Specialists, PC - Tualatin | Tualatin, Oregon 97062 |
| Oncology Hematology of Lehigh Valley | Bethlehem, Pennsylvania 18015 |
| Consultants in Medical Oncology and Hematology, PC | Drexel Hill, Pennsylvania 19026 |
| Andrews and Patel Associates | Harrisburg, Pennsylvania 17111 |
| US Oncology - Medical Oncology Associates (Nahar) | Kingston, Pennsylvania 18704 |
| Hematology & Oncology Associates of Rhode Island | Cranston, Rhode Island 02920 |
| South Carolina Oncololgy Associates, PA | Columbia, South Carolina 29210 |
| US Oncology - Cancer Centers of the Carolinas - Easley | Easley, South Carolina 29640 |
| US Oncology - Cancer Centers of the Carolinas - West Faris | Greenville, South Carolina 29605 |
| US Oncology - Cancer Centers of the Carolinas - Butternut | Greenville, South Carolina 29605 |
| US Oncology - Cancer Centers of the Carlinas - Eastside | Greenville, South Carolina 29615 |
| US Oncology - Cancer Centers of the Carolinas - Seneca | Seneca, South Carolina 29672 |
| US Oncology - Cancer Centers of the Carolinas - Spartanburg | Spartanburg, South Carolina 29307 |
| US Oncology - University of Tennessee Cancer Institute - Bartlett | Bartlett, Tennessee 38133 |
| US Oncology - University of Tennessee Cancer Institute - Germantown | Germantown, Tennessee 38138 |
| US Oncology - University of Tennessee Cancer Institute - Memphis | Memphis, Tennessee 38104 |
| SCRI | Nashville, Tennessee 37203 |
| US Oncology - Texas Cancer Center - Abilene (South) | Abilene, Texas 79606 |
| US Oncology - Texas Oncology, PA - Amarillo | Amarillo, Texas 79106 |
| US Oncology - Texas Oncology - Arlington South | Arlington, Texas 76014 |
| US Oncology - Texas Oncology, PA - Bedford | Bedford, Texas 76022 |
| US Oncology - Texas Oncology, PA - Dallas | Dallas, Texas 75231 |
| US Oncology - El Paso Cancer Treatment Center - West | El Paso, Texas 79902 |
| US Oncology - El Paso Cancer Treatment Center | El Paso, Texas 79902 |
| US Oncology - Texas Oncology, PA - Fort Worth | Fort Worth, Texas 76104 |
| US Oncology - Southwest Fort Worth Cancer Center | Fort Worth, Texas 76132 |
| US Oncology - Texas Oncology - Grapevine | Grapevine, Texas 76051 |
| US Oncology - San Antonio Tumor & Blood Clinic - Kerrville | Kerrville, Texas 78028 |
| US Oncology - Longview Cancer Center | Longview, Texas 75601 |
| US Oncology - Texas Oncology - McAllen | McAllen, Texas 78503 |
| US Oncology - Texas Oncology - Mesquite | Mesquite, Texas 75150 |
| US Oncology - Allison Cancer Center | Midland, Texas 79701 |
| US Oncology - Texas Oncology - Paris | Paris, Texas 75460-5004 |
| US Oncology - Cancer Care Centers of South Texas | San Antonio, Texas 78217 |
| US Oncology - San Antonio Tumor & Blood Clinic - M. Oak | San Antonio, Texas 78258-3912 |
| US Oncology - Texas Oncology - Sherman | Sherman, Texas 75090-0504 |
| Scott & White Healthcare Department of Research | Temple, Texas 76508 |
| US Oncology - Texas Oncology - Tyler | Tyler, Texas 75702 |
| ETMC dba Tyler Hematology Oncology | Tyler, Texas 75701 |
| ETMC dba Blood and Cancer Center - East Texas | Tyler, Texas 75701 |
| US Oncology - Texas Oncology Cancer Care and Research Center | Waco, Texas 76712 |
| US Oncology - Texas Oncology - Weslaco | Weslaco, Texas 78596 |
| US Oncology - Texoma Cancer Center | Wichita Falls, Texas 76310 |
| US Oncology - Arlington Fairfax Hematology Oncology | Arlington, Virginia 22205 |
| US Oncology - Onc and Hem Assoc of Southwest VA, Inc - Christiansburg | Christiansburg, Virginia 24073 |
| US Oncology - Fairfax Northern VA Hem-Onc PC | Fairfax, Virginia 22031 |
| US Oncology - Fairfax - Northern Virginia Hematology-Oncology, PC - Gainesville | Gainesville, Virginia 20155 |
| US Oncology - Fairfax - Northern Virginia Hem-Onc, PC - Leesburg | Leesburg, Virginia 20176 |
| US Oncology - Onc and Hem Assoc of Southwest VA, Inc - Low Moor | Low Moor, Virginia 24457 |
| US Oncology - Onc and Hem Assoc of Southwest VA, Inc - Roanoke | Roanoke, Virginia 24014 |
| US Oncology - Onc and Hem Assoc of Southwest VA, Inc - Salem | Salem, Virginia 24153 |
| US Oncology - Shenandoah Oncology - Winchester | Winchester, Virginia 22601 |
| US Oncology - Fairfax - Northern Virginia Hem-Onc, PC - Woodbridge | Woodbridge, Virginia 22191 |
| US Oncology - Onc and Hem Assoc of Southwest VA, Inc - Wytheville | Wytheville, Virginia 24382 |
| Peace Health Medical Group | Bellingham, Washington 98226 |
| US Oncology - Puget Sound Cancer Center - Edmonds | Edmonds, Washington 98133 |
| US Oncology - Puget Sound Cancer Center - Seattle | Seattle, Washington 98133 |
| US Oncology - Cancer Care Northwest - Holland | Spokane, Washington 99218 |
| US Oncology - Cancer Care Northwest - Sherman | Spokane, Washington 99202 |
| Medical Oncology Associates PS | Spokane, Washington 99208 |
| US Oncology - Cancer Care Northwest - Mission | Spokane, Washington 99218 |
| US Oncology - Northwest Cancer Specialists, PC - Vancouver - 136th St. | Vancouver, Washington 98684 |
| US Oncology - Northwest Cancer Specialists, PC - Vancouver - 134th St | Vancouver, Washington 98686 |
| US Oncology - Yakima Valley Memorial Hospital/North Star Lodge (Boyd) | Yakima, Washington 98902 |
| St. Vincent Hospital/Green Bay Oncology | Green Bay, Wisconsin 54301 |
