Trial Information

The Financial Impact of Allogeneic Stem Cell Transplantation on Patient and Family: A Pilot Study

Allogeneic hematopoietic stem cell transplantation (HSCT) is the indicated treatment for
many life-threatening illnesses affecting both adults and children. Transplant recovery and
late effects require long-term medical care. At the same time that the family faces a
medical crisis, a resulting financial crisis may also be pending, but is often pushed to the
background due to the necessity of first preserving life. A large proportion of patients
undergoing HSCT incur significant financial burden from out-of-pocket costs and a decrease
in household income. Predetermined variables, both medical and demographic, gathered at the
pre-transplant clinical consultation have the potential to predict the patients at greatest
financial risk. This study will describe both the out-of-pocket costs and the income changes
that may result from HSCT to help patients and their caregivers have a clearer picture of
these costs and develop a financial plan. Health care providers can utilize this
information to better inform patients and connect them to resources.