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Multi-Center Project: Spinal Abnormalities in Neurofibromatosis Type1 (NF1) Patients


N/A
3 Years
18 Years
Open (Enrolling)
Both
Neurofibromatosis Type 1

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Trial Information

Multi-Center Project: Spinal Abnormalities in Neurofibromatosis Type1 (NF1) Patients


Inclusion Criteria:



- Meet NIH diagnostic criteria for NF1

- Radiographic documentation of scoliosis will be necessary for inclusion as a
"scolosis case"

- Age between 3 and 18 years

Exclusion Criteria:

- Do not have NF1

Type of Study:

Observational

Study Design:

Observational Model: Cohort, Time Perspective: Prospective

Principal Investigator

Jacques D'Astous, M.D.

Investigator Role:

Principal Investigator

Investigator Affiliation:

Shriners Hospitals for Children

Authority:

United States: Institutional Review Board

Study ID:

IRB_00023261

NCT ID:

NCT00667836

Start Date:

March 2006

Completion Date:

September 2009

Related Keywords:

  • Neurofibromatosis Type 1
  • Neurofibromatosis Type 1
  • NF1
  • Spinal Anomalies
  • Congenital Abnormalities
  • Neurofibromatoses
  • Neurofibromatosis 1
  • Osteitis Fibrosa Cystica

Name

Location
Shriners Hospitals for Children, Salt Lake City Salt Lake City, Utah  84103